Felix vs 'The Ventilator'

I've found it difficult to blog over the last few days. I am very tired and am having my ventilator doing a lot of the breathing for me. My ventilator and me have a definite 'love hate' relationship. When it's behaving, it helps me breathe and when I feel up to it I try to help the ventilator by breathing too. My parents like this because they can see red lines appear on the monitor which are my breaths, over the green lines which are the ventilators. The hard part is when I get a tickley chest. I can feel it bubble in my lungs which really upsets me. So, I strike. I refuse to breathe and as a result, my oxygen levels and heart rate drop. I set the alarms off and get some one-to-one attention with the nurses. The nurses always say "come on cheeky" and then places a suction tube down into my lungs to remove some secretions. With these removed I 'drop' a few times again but then forgive the ventilator and continue letting it breathe for me. Sometimes the doctors make the ventilator do lots of work for me, I like this -  but know it isn't good in the long term. Other times, they try to make the ventilator not help me too much, but I don't like this and I let everybody know in the only way I can. Strike!

The reason all this has started to happen to me is because I have picked up an infection. This appeared the day after I had my 'long line' put in. I have been told I am small (compared to you lot yes!) and because of this I'm not very good at fighting these bugs which live on all you big people. I've learnt lots of new words over the last week and I know that my CRP should be 4, but it went up to 189. After being given some very strong antibiotics it's started to slowly go back down and is now at 179. I'll be better again when it's back to 4.

However dramatic this all sounds, the real reason I haven't blogged much is because I now have both my hands trapped by stupid splints. In one hand I have a line feeding me antibiotics and the other I have all my sugary food. Sometimes I try to break free! but punch myself in the face.

I know my Mummy and Daddy have been worried recently because I always see them hugging each other (eeew) but they still sing songs to me, they read me books and talk to me all day. I can nearly remember all of the story 'Quacky Quack Quack' and love hearing the song 'On top of Spaghetti', as well as lots of funny Thai songs my Mummy used to sing to me when I was in her tummy.

My Dad said he's made a little page on this blog so people can read all about the stuff the doctors talk about. You can find that here -Medical Info

I have to go now, my parents will be here to visit me anytime now to read me my bedtime story. 

Night night,

Felix! x