Felix 1 - Nurses 1
Do you remember my last blog post I'm my own doctor? I had just managed to score a point against the nurses by removing my cannula, increased my feeds and started to wear clothes. I was very proud of myself. I could move my hands all over my face without pieces of plastic prodding me, hold my parents fingers on both hands and grab onto my feeding tube when it irritated me. More on that subject later. The last picture I had that day was when I was looking like this.
Cute eh ? I think so. Look at me sucking my fingers unobstructed!
I would have thought that the nurses would have been happy to see this but, I have a feeling my blog is being read by the people on the inside. "Felix 1 - Nurses 0" - news travels fast. Nobody likes to lose do they, especially to somebody 1/50 their size. I would like to say that I was shocked by the hospitals next move, but I would be lying. After all, all is fair in love and war.
The hospital staff returned when I least expected them, my parents had just put me down after cuddles and I noticed a blue figure walking towards me. A single blue figure. 1 vs. 1. Bring it on. She picked up my wrists and placed a light underneath, illuminating my flesh in the process. She pulled out a sharp pointing thing and inserted it into my hand. I wasn't giving up blood that easy nursey! I don't know how, but I wasn't. Another blue figure approached. 2 vs 1. Unfair by anybodies books. This nurse held my hand whilst the first tried harder to get my blood. No way. Not in my incubator. Wait?! That's my Mum holding my head?! I was shocked, I fixed my glare onto her and stared at her in disgust - she didn't like this so swapped with my Dad. I stared at my Dad in disgust - he just belittled me "Come on little man, just give the Nurses your blood!" 4 vs 1. What a joke! I started losing it at this point, what were they all thinking? I shrieked over and over again until something was put into my mouth, it tasted so nice, sweet sugary water, sweet sugary water, sweet....sugary......water.......PAIN! Aaaargh, I shall not surrender - you can not pacify me!!!
One big person walked away 3 vs 1. Another followed 2 vs 1. Just my parents left now. They kissed me and said "sorry". Forgiven. They left the room 1 vs 0? I had won! No blood given and against those odds? Who would have thought.
10 minutes later I saw another figure approach. This was a new figure, it was not wearing blue, but black and red. She was shortly backed-up by a blue figure. I hid my hands under my blanket. She didn't even look for them - she grabbed my head, put something wet and cold on it - moved it around, stuck something in and left. Finished. My head felt a bit funny, but I wasn't too sure if I had won or not. All this fighting made me tired, I slept. I only found out I lost when my parents returned and the room fell silent, my parents looked shocked and I heard my nurse say "sorry", a bit late for that I thought.
I had lost. I mean look at me!? What a complete mess.
There are positives though, every cloud and all. Before I saw my reflection, I didn't actually know I had anything on my head, I did feel something when the nurses were here, but after that I couldn't be too sure what that was. My Dad likes it because he knows I can't grab hold of it and try to pull it out and it does allow me to keep my hands free to suck and move around.
What they didn't remember is that I can still grab hold of my feeding tube (the one stuck to my face and up my nose), especially now I have nothing attached to my hands. I have learnt a great counter-attack for when my parents are changing my nappy. This involves shrieking and crying, whilst flailing my arms around the place - if this doesn't stop them I simply flail my arm onto my pipe, close my grip and PULL! If I can do this before my Dad grabs my hand I can successfully pull out the entire tube. It hurts like mad to get it pulled out and it hurts even more to get it re-inserted but, I feel that I'm scoring points. Since this there has been a introduction of white things on the end of my hands. I think these have just taken my fingers away and replaced them with something soft and warm. I can no longer grab at things or scratch myself, and to be honest - but don't tell anybody, they are actually pretty nice.
Felix
x
Comment from DAD - However alarming some of these pictures look Felix is doing amazing. The reason he has his cannula inserted into his head is because his veins have all been used before, making it difficult and dangerous to try and force it. He also (fingers crossed) will only need this in his head for 3 more days, until the end of his antibiotics. His infection has almost dissapeared from his body. His CRP is now 32 which is a massive drop from its peak at 189. Once this is down to 4 he'll be free of infection. He has also started to do something else even more amazing but I will let him tell you about that soon.
Thanks for all your lovely comments and well wishes.
Daddy Rob.
Do you remember my last blog post I'm my own doctor? I had just managed to score a point against the nurses by removing my cannula, increased my feeds and started to wear clothes. I was very proud of myself. I could move my hands all over my face without pieces of plastic prodding me, hold my parents fingers on both hands and grab onto my feeding tube when it irritated me. More on that subject later. The last picture I had that day was when I was looking like this.
Cute eh ? I think so. Look at me sucking my fingers unobstructed!
I would have thought that the nurses would have been happy to see this but, I have a feeling my blog is being read by the people on the inside. "Felix 1 - Nurses 0" - news travels fast. Nobody likes to lose do they, especially to somebody 1/50 their size. I would like to say that I was shocked by the hospitals next move, but I would be lying. After all, all is fair in love and war.
The hospital staff returned when I least expected them, my parents had just put me down after cuddles and I noticed a blue figure walking towards me. A single blue figure. 1 vs. 1. Bring it on. She picked up my wrists and placed a light underneath, illuminating my flesh in the process. She pulled out a sharp pointing thing and inserted it into my hand. I wasn't giving up blood that easy nursey! I don't know how, but I wasn't. Another blue figure approached. 2 vs 1. Unfair by anybodies books. This nurse held my hand whilst the first tried harder to get my blood. No way. Not in my incubator. Wait?! That's my Mum holding my head?! I was shocked, I fixed my glare onto her and stared at her in disgust - she didn't like this so swapped with my Dad. I stared at my Dad in disgust - he just belittled me "Come on little man, just give the Nurses your blood!" 4 vs 1. What a joke! I started losing it at this point, what were they all thinking? I shrieked over and over again until something was put into my mouth, it tasted so nice, sweet sugary water, sweet sugary water, sweet....sugary......water.......PAIN! Aaaargh, I shall not surrender - you can not pacify me!!!
One big person walked away 3 vs 1. Another followed 2 vs 1. Just my parents left now. They kissed me and said "sorry". Forgiven. They left the room 1 vs 0? I had won! No blood given and against those odds? Who would have thought.
10 minutes later I saw another figure approach. This was a new figure, it was not wearing blue, but black and red. She was shortly backed-up by a blue figure. I hid my hands under my blanket. She didn't even look for them - she grabbed my head, put something wet and cold on it - moved it around, stuck something in and left. Finished. My head felt a bit funny, but I wasn't too sure if I had won or not. All this fighting made me tired, I slept. I only found out I lost when my parents returned and the room fell silent, my parents looked shocked and I heard my nurse say "sorry", a bit late for that I thought.
I had lost. I mean look at me!? What a complete mess.
There are positives though, every cloud and all. Before I saw my reflection, I didn't actually know I had anything on my head, I did feel something when the nurses were here, but after that I couldn't be too sure what that was. My Dad likes it because he knows I can't grab hold of it and try to pull it out and it does allow me to keep my hands free to suck and move around.
What they didn't remember is that I can still grab hold of my feeding tube (the one stuck to my face and up my nose), especially now I have nothing attached to my hands. I have learnt a great counter-attack for when my parents are changing my nappy. This involves shrieking and crying, whilst flailing my arms around the place - if this doesn't stop them I simply flail my arm onto my pipe, close my grip and PULL! If I can do this before my Dad grabs my hand I can successfully pull out the entire tube. It hurts like mad to get it pulled out and it hurts even more to get it re-inserted but, I feel that I'm scoring points. Since this there has been a introduction of white things on the end of my hands. I think these have just taken my fingers away and replaced them with something soft and warm. I can no longer grab at things or scratch myself, and to be honest - but don't tell anybody, they are actually pretty nice.
Felix
x
Comment from DAD - However alarming some of these pictures look Felix is doing amazing. The reason he has his cannula inserted into his head is because his veins have all been used before, making it difficult and dangerous to try and force it. He also (fingers crossed) will only need this in his head for 3 more days, until the end of his antibiotics. His infection has almost dissapeared from his body. His CRP is now 32 which is a massive drop from its peak at 189. Once this is down to 4 he'll be free of infection. He has also started to do something else even more amazing but I will let him tell you about that soon.
Thanks for all your lovely comments and well wishes.
Daddy Rob.
